Seven posts were made to the CFFC Facebook page during the week of 2/18-24/2024.
02/18/2024 – My Journey With Nonsense Mutations – As related in this story, knowing the details of your CF mutations is important for identifying treatment options and improving the understanding of the CF community at large.
02/19/2024 – Traveling with cystic fibrosis, Jess tells us her story – A common phrase in the CF community is “don’t let CF define you.” This story is about a young woman to takes that phrase to the extreme.
02/20/2024 – Antibiotic arenicin found effective against M. abscessus in cell study – Even with the advances made with CFTR modulators, bacterial infections are still a significant concern. This study has promising results for overcoming antibiotic resistance.
02/21/2024 – Adult CF Assistance Program 2024-25 – The Cystic Fibrosis Foundation has crafted an email to be sent to New York state legislators advocating the full funding of the Adult CF Assistance Program in the State’s 2024-25 budget. You can add your voice using this link.
02/22/2024– No More Missed Moments – This story is about the growth of a fighter determined to craft a life not defined by her CF. Unfortunately, one of the fights was to gain access to Trikafta.
02/23/2024 – Life Without Modulators Small Group Discussion – The Cystic Fibrosis Foundation issued an invitation to a small group discussion to support the members of the CF community who are not benefiting from a modulator.
02/24/2024 – Probiotic bacteria, adapted in lab, may combat P. aeruginosa infections – Research continues around the world to find agents to fight a common CF lung infection.