Five posts were made to the CFFC Facebook page during the week of 2/2-8/2025.
02/03/2025 – How I Discovered I Had Cystic Fibrosis – Another story about a delayed CF diagnosis with a side story on self-advocacy.
02/04/2025 – Updated airway clearance vest for CF launched by Baxter – Even with improved treatments, airway clearance is still necessary for some. This article describes improvements to the vest that is used by many people living with CF.
02/05/2025 – Navigating a career pathway: advice from CF researchers – This column is geared towards careers in scientific research, but the advice is relevant to many (if not all) career paths.
02/06/2025 – Risk of cardiovascular disease may rise for adults using Kaftrio/Trikafta – There are no silver bullets. This study out of Italy indicates that the benefits of Trikafta may be offset by an increased risk of heart disease.
02/08/2025 – CFF Survey on Digest System Issues – The Cystic Fibrosis Foundation is seeking input to aid the development of their strategic plan. Here is the request: “As the CF Foundation continues work to support its next strategic plan, we have identified two areas of community concern to further explore: digestive system issues and aging with CF. We invite you to complete this brief survey to help identify and describe the impact that digestive system issues have on your everyday life, and to provide more insight into your concerns around aging with CF.” The link will take you to the survey.