Six posts were made to the CFFC Facebook page during the week of 2/23-3/1/2025.
02/23/2025 – Thriving at University with Cystic Fibrosis: My Journey – This story has several important themes: finding appropriate health care when relocating, assuming responsibility for treatments as a young adult, gaining balance in your life and building a support network.
02/24/2025 – Exploring new research ideas in cystic fibrosis – This brief summary of new research initiatives from Cystic Fibrosis contains several pieces of good news: research continues in more places than the US, research is covering a wide variety if issues in CF, and attention is being paid to the different expression of CF in non-white populations.
02/25/2025 – How Creative Writing Helped Me Process Life With CF – Each case of CF is unique so it’s not surprising that people come up with unique ways to cope with their life.
02/26/2025 – In CF mice, melatonin treatment helps normalize infection response – As noted in the linked article, CFTR modulators to not eliminate the risk of infection. Therefore, finding supplemental treatments (such as melatonin) to reduce effects of infections is a significant discovery.
02/27/2025 – My CF journey – Clare Emms – The story of becoming a mom with CF is becoming less unique, but it is still a wonderful story.
02/28/2025 – Recruitment has begun for a major gene therapy trial for people with cystic fibrosis in the UK – We regularly point out that CF research is conducted around the globe. This report from the UK announces the launch of clinical trials for gene therapy and the hope it holds for individuals not eligible for CFTR modulators