Seven posts were made to the CFFC Facebook page during the week of 3/9-15/2025.
03/09/2025 – Kaftrio eases some CF symptoms after lung transplant: Study – Kaftrio (Trikafta in the US) is noted most for producing significant improvement in lung function, so you might not expect a benefit for those who have had lung transplants. This study noted a mix of benefits and risk.
03/10/2025 – Endlessly Waiting With CF – This blogger has some interesting observations on the time it takes to clear an exacerbation or other treatment. And she didn’t even talk about waiting in clinic or for doctors’ rounds in the hospital.
03/11/2025 – CF parents see barriers to daily physical activity in schools – We generally think of schools as a place for learning; that is, mental activity. This article discusses the potential schools could have to promote physical activity that is a key part of CF care.
03/12/2025 – My Unexpected Experience With Trikafta – A “compassionate use” prescription for Trikafta was a life-changer for someone whose mutations didn’t match the standard protocol.
03/13/2025 – Microplastics could be fueling antibiotic resistance – Resistant organisms are a big concern in the CF community. This article discusses research that discovered a surprising source of resistance. Although the research was directed to conditions in refugee camps, the findings may be relevant in a society surrounded by plastics.
03/14/2025 – Gratitude and Guilt With CF – This blogger describes the range of emotions she has experienced through the changes in her life and her expectations.
03/15/2025 – A Fresh Look for the Kit Taylor Lecture – The annual Kit Taylor Memorial Lectureship, established in the memory of Kathryn Irene Taylor, will be held on April 22, 2025. The visiting lecturer this year will be Dr. Michael Narkewicz. Check the link for details and contact info for sign up.