Six posts were made to the CFFC Facebook page during the week of 4/13-19/2025.
04/13/2025 – Personal story by Alice Vogt – Here’s a two-for-one story. A woman’s posts after her first and second bilateral lung transplants.
04/14/2025– Patients with severe CF may benefit most from Trikafta: Real-world data – Data from the population of Trikafta users provides insights that cannot be obtained in the lab. As time passes greater understanding will be obtained.
04/15/2025 – How CF Shaped My Relationships With Others – Navigating social life is one of the challenges that people living with CF face. And like everything else, each experience is unique. This story is one man’s approach to relationships.
04/16/2025 – Genetic Therapies Webinar Recording – Genetic therapies seek to provide benefits for individuals who do not benefit from CFTR modulators. To learn more about the types of therapies being pursued and clinical trial process, you can watch this one-hour video from the Cystic Fibrosis Foundation.
04/17/2025 – “Growing awareness of neurodiversity is incredibly important for children with CF and additional needs”: Jess and Ellie’s story – Raising a child is challenging. Raising a child with a disability is dramatically more challenging. Raising a child with multiple disabilities? A lot of respect is owed to this mom who worked hard to get the best care for her daughter.
04/18/2025 – New human ‘multi-zonal’ liver organoids improve injury survival in rodents – With an aging CF community, liver disease is an increasing risk. The development of liver organoids can aid the development of treatments for various liver problems (such as drug-induced liver injury).