Seven posts were made to the CFFC Facebook page during the week of 4/16-22/2023.
04/16/2023 – How ‘The Dark Side of the Moon’ helped connect me to the world – This blogger notes how one album helps him cope with the impacts of CF. There are probably other albums, or groups of songs, that help you in the same ways.
04/17/2023 – Cystic Fibrosis Foundation Commits Up to $15.5M in Additional Funding for Potential in Enzyme Therapy – While lung disease gets a lot of attention, research continues in all areas affected by CF.
04/18/2023 – Young Cystic Fibrosis Patient Thriving Thanks To His Family and Team of Caregivers – A life with CF can have a very difficult start. Fortunately, in this case, a good result was achieved by attentive parents and a dedicated care team overcame.
04/19/2023 – Neutrophil cell subtype tied to lung function decline in stable CF – Two interesting take-aways from this study. One, white blood cells that fight infections can lead to problems with inflammation. Two, the extent of the inflammation issue is more problematic in adults than in children.
04/20/2023 – “We hope Luca can enjoy the world and all the opportunities he wants to”: Dad Jason shares Luca’s story – Here is a human story that helps us remember the importance of finding effective treatments for all CF mutations.
04/21/2023 – What I’ve Learned About Self-Advocacy as a Person with CF and Nurse – Self-advocacy is a critical life skill, particularly when dealing with a chronic illness. This blogger offers some good advice for developing your self-advocacy capability.
04/22/2023 – More, better info on reproductive health ‘vital’ for CF women: Study – The changes in life expectancy and overall health is driving changes in CF care models. This study concludes that the approach to female productive health needs to be reexamined.