Six posts were made to the CFFC Facebook page during the week of 4/20-26/2025.
04/20/2025 – Cystic Fibrosis: Evelyn’s Story – This story is a bit of a promotion for the hospital but it does present a story of early diagnosis and the importance of an astute CF care team.
04/21/2025 – Kit Taylor Pediatric Grand Rounds -If you are unable to attend the Kit Taylor community event, you have another opportunity hear from Dr. Michael R. Narkewicz, Professor of Pediatrics at the University of Colorado School of Medicine. He will discuss pediatric gastroenterology, hepatology and nutrition in CF at grand rounds Wednesday, April 23rd, 8:00AM – 9:00AM.
04/23/2025 – Our DNA is at risk of hacking, warn scientists – People in the CF community really don’t need new concerns, but…. The efforts to find gene therapies to “cure” CF or mitigate symptoms could be exposed to risks in cyber-biosecurity.
04/24/2025 – The Challenges and Triumphs of Aging With CF – We have shared many reports on the implications of aging in the CF community. This blog is a personal view of the aging process.
04/25/2025 – “So much about my life and the world I am part of, but was always somewhat bewildered by, just makes more sense”: Emma’s autism diagnosis – We have noted before that CF does exempt anyone from other medical issues. The good news in this story is that Emma has learned to manage her multiple diagnoses with the help of her care team.
04/26/2025 – Kaftrio eases sinonasal symptoms in children, adolescents – More studies are being conducted to understand how Trikafta (Kaftrio in Europe) impacts organs other than the lungs