Six posts were made to the CFFC Facebook page during the week of 4/21-27/2024.
04/21/2024 – Living in the In-Between – We tend to make generalizations about CF even though every instance is unique. It’s important that we support everyone living with CF regardless of the variations in presentation.
04/22/2024 – Save the Date – CFFC Family Day – CFFC is pleased to announce the return to Family Day – an event to bring the entire CF community together for fun and support.
Thanks to the responses to our quick survey, we have selected Wickham Farms in Penfield as the location for Family Day 2024. We have reserved the Shade Barn on August 4th from 1:00PM to 5:00PM for the exclusive use of CFFC. Attendees will have full access to all activities and food concessions at Wickham Farms.
We respect infection control concerns so we will have face masks and sanitizer available. We will also provide visible identification for individuals living with CF so you can make informed decisions about your social interactions.
We are still working out the details of how the day will progress. We will also design an online registration form. So stay tuned for more information.
We look forward to a wonderful day in August. See you there!
04/23/2024 – Infection Control Reminder – Here’s an important reminder from Cystic Fibrosis Queensland about what CFTR modulators do and don’t do. NOTE: Folks in Queensland are heading into winter while we’re looking forward to summer, but the advice is still relevant.
04/24/2024 – Past trauma left me full of anxiety before my most recent surgery – Anxiety has many sources. It’s unfortunate when anxiety comes from successful treatments.
04/25/2024 – CF Foundation Provides Up to $8.5M to SpliSense to Support a Clinical Trial for a Potential Treatment for Splicing Mutations – Work continues to find treatments for individuals who do not benefit from current CFTR modulators.
04/27/2024 – Controlling anxiety is a key part of managing my health with CF – Similar to a story we shared a few days ago, This blogger relates the significance of anxiety in life with CF.