Seven posts were made to the CFFC Facebook page during the week of 4/23-29/2023.
04/23/2023 – Sandra’s Story – Another story that reminds us that lung transplantation brings new life to the recipient, but does not fix everything.
04/24/2023 – Orkambi eased airway inflammation, boosted bacterial diversity – This study points to the value of CFTR modulators with an important caveat: to achieve the benefits, treament needs to begin before chronic infection takes hold.
04/25/2023 – What it’s like to live with cystic fibrosis – A teen explains CF – and his reactions to CF – to his peer group.
04/26/2023 – Vaccine printer could help vaccines reach more people – Some times, an advance in medicine is just so awesome that it needs to be shared here even if it doesn’t relate (directly) to CF.
04/27/2023 – Navigating CF parenthood during a new era of the disease – Advances in treatments have changed the expectations for life with CF; however, a parent’s concerns for her/his child continues.
04/28/2023 – Kit Taylor Lecture Provides Food for Thought – Nutrition remains a significant issue for people living with CF. This year’s Kit Taylor lecture explored the changing landscape of dietary requirements.
04/29/2023 – Differences in CF by patient’s sex appear to be due to gene activity – The CFTR genes are not the only deteminates of the severity of CF symptoms. The combination of the CF genes and the chromosomes that determine sex has an impact on the inflammatory response.