Seven posts were made to the CFFC Facebook page during the week of 4/28-5/4/2024.
04/28/2024 – Finding Normalcy After Transplant – Even with the advent CFTR modulators, other treatments (like lung transplantation) remain the hope of those who do not benefit from the modulators.
04/29/2024 – Top tips for staying cool in the sun this summer – As we get closer to summer (an encounter hot days in spring), you can easily adjust this advice from CF Queensland. Simply substitute Memorial Day and 4th of July for Christmas and New Years.
04/30/2024 – Finding Freedom Through Online Gaming – Virtual doctor’s visits and Zoom chats have become more routine. Thai blogger notes gaming can be another virtual option for dealing with isolation.
05/01/2024 – With 450 clinical trials initiated since 2018, outlook for CF ‘hopeful’ – This report confirms the notion that researchers are not complacent about the current suite of CF treatments.
05/02/2024 – Following Your Dreams: Edel’s Pregnancy Journey – Don’t be misled by the title. Edel’s story covers all of the ups and downs in her life that eventually brought her to a successful pregnancy.
05/03/2024 – Test of physical abilities designed for COPD may work well for CF – It’s good when scientists in one discipline can make use of results from another area.
05/04/2024 – “We hope our children will all have a life unlimited, both in terms of their ambitions and their life expectancy”: Thomas and Saskia share their story – Having a child with CF is tough enough. What about two? And three kids with CF? This family shares their positive outlook.