Seven posts were made to the CFFC Facebook page during the week of 4/5-11/2026.
04/05/2026 – New study finds low-dose CT scans useful for tracking CF therapy – There are two bits of good news in this study. First, the CT scan results showed reduced lung damage for Trikafta users. Second, the use of low radiation doses has positive long-term implications.
04/06/2026 – ‘There’s no limit to what I can do!’: Keira’s London Marathon story – Many people living with CF use exercise to maintain their health and there are some who turn exercise into a challenge and a fund raising opportunity.
04/07/2026 – National Donate Life Month – April is National Donate Life Month. Please consider registering as an organ donor. If you have already, thank you. The linked page offers tools for spreading the word.
04/08/2026 – Planning for Retirement with CF – So many things about life with CF that were once improbable have become realistic. This story adds thinking ahead to retirement to that growing list.
04/09/2026 – Bronchiectasis research: treating a common CF lung complication – Although this article is recruiting participant for a clinical trial in the UK, it does provide a good definition of bronchiectasis and its relationship to CF.
04/10/2026 – Parenting with Cystic Fibrosis – Being a person with CF who becomes a parent of a baby with CF presents produces a unique perspective. As a caregiver told her: “It’ll be okay—she has a very experienced mama, and you know how it feels.”
04/11/2026 – More CF patients eligible for Alyftrek, Trikafta after new FDA decision – Continued testing is expanding the number of people living with CF who can benefit from two CFTR modulators.