Seven posts were made to the CFFC Facebook page during the week of 4/7-13/2024.
04/07/2024 – Study ID’s symptoms with biggest impact on life quality for CF adults – A lot of attention is given to medical treatment for CF symptoms. This study suggests that equal attention is needed for quality of life support.
04/08/2024 – A Father’s Vision for A CF-Free World – A father is inspired to turn the experience with his son into the goal of helping others. This article promotes Canada’s Walk To Make Cystic Fibrosis History; however, it could encourage you to participate in Great strides in May.
04/09/2024 – Researchers closing in on genetic treatments for hereditary lung disease, vision loss – One of the challenges in gene therapy is delivery to the target organs. This research holds promise for more direct delivery of CF gene therapies to the lungs.
04/10/2024 – Deciding When to Remove My G-Tube as A Kid With CF – This story is not only about options for maintaining weight; it is also a story about empowerment.
04/11/2024 – Grant supports study of antibiotics with liquid crystalline nanoparticles – The search continues for treatments to overcome antibiotic resistance.
04/12/2024 – “You are worth something, you offer something, and you contribute every day”: James’s story – James suggests that self esteem is an important part of dealing with life with CF.
04/13/2024 – Landmark study involving babies in Ireland supports use of Cystic Fibrosis drug in infants from four weeks of age – This study, conducted with Ivacaftor (Kalydeko), shows great promise for postponing the onset of severe CF symptoms.