Seven posts were made to the CFFC Facebook page during the week of 5/14-20/2023.
05/14/2023 – Help Define Education Day 2023 – CFFC is seeking your input to plan the 2023 edition of Education Day so that our program is relevant and convenient.
05/15/2023 – Reflections on your experiences of Orkambi, Symkevi and Kaftrio – UK’s Cystic Fibrosis Trust shared a summary of the responses to a survey of the experiences with CFTR modulators.
05/16/2023 – A Tribute to My Mom’s Selfless Dedication – This should have been posted on Sunday, but recognizing the wonders of our mothers is something we can do every day.
05/17/2023 – CF patient 1st in US to undergo lung imaging with Xenoview – Pulmonologists may be gaining a new tool to evaluate the efficiency of lungs of CF patients.
05/18/2023 – “My mental health deserves the same care and respect as my physical health”: Izzie’s mental health story – Like any chronic disease, CF takes a toll on mental, as well as physical, health. This blogger shares her experience and haw she has dealt with the challenge.
05/19/2023 – Cellular screen identifies therapies that may help boost CFTR function – Researchers in the Netherlands have developed a technique that can be used to identify compounds that improve CFTR funtionality regardless of the specific mutations.
05/20/2023 – Learning to Make CF Treatments Fun for My 4-Year-Old Son – This story highlights two important components of dealing with raising a child with CF: a supportive care network (family as well as healthcare professionals) and creativity.