Seven posts were made to the CFFC Facebook page during the week of 5/21-27/2023.
05/21/2023 – A day at a CF clinical trials centre – You may see announcements of new clinical trials or read reports on clinical trial results. This article takes a look behind the scenes at some of the work needed to keep clinical trials running.
05/22/2023 – I still have CF issues even though I’ve had a double-lung transplant – Transplants (and Trikafta) tackle the threat of lung disease but there is more to CF that still needs attention.
05/23/2023 – Help Define Education Day 2023 – CFFC is seeking input for planning the 2023 edition of Education Day. Please complete a short survey to share your opinions by June 15th.
05/24/2023 – Coming Together to Advocate for Our Sons – CF has always been an isolating disease complicated by infection control protocols and made more difficult in the pandemic. This story shows: (a) how important peer connections are, and (b) the value of virtual tools to overcome isolation. And a shout out to the counselor who facilitated the connection.
05/25/2023 – Announcing Living with CF Golf Tournament 2023 – Are you missing the PGA Championship? Cheer up! The CFFC Living with CF Golf Tournament fill the gap. Join us on 9/9/2023.
05/26/2023 – Genetic therapies: what you need to know – UK’s Cystic Fibrosis Trust has prepared a set of information resourses (FAQs, a video and a glossary of terms) regarding genetic therapy.
05/27/2023 – Antioxidants may help improve CF exercise capacity: Study – Antioxidants are known for many health benefits. This study indicates that antioxidants can help improve exercise for people with CF, especially those with elevated blood sugar levels.