05/24/2026 – The Colonoscopy I Kept Putting Off – People living with CF are aware of their vulnerability to other health issues, but “awareness” and “action” are two separate processes. This blogger encourages action equal to awareness.
05/25/2026 – Elise’s Story: How Clinical Trials Gave Me Back My Future – We are probably all aware that the CF treatments we have today are the result of clinical trials. This blogger adds to our awareness of the considerations for participation in a clinical trial.
05/26/2026 – Every CF Gene Tells a Different Story – This post by CF Australia from May 15th advances awareness that an individual’s mutations impact their symptoms and the effectiveness of specific treatments. While the data comes from the Australian data registry, the assessment of variations is valid across the CF population. [Note: You need to be logged into Facebook to view this link.]
05/27/2026 – Why Mental Health Care Matters When You Have CF – Over the past several years, there has been an increased awareness of the mental health issues associated with CF. But this blogger points out that the critical awareness lies with the individual – recognizing their mental health is at risk and seeking help to address it.
05/28/2026– Immune changes linked to CF lung issues begin early, study shows – A lot has been publicized about the benefits of CFTR modulator therapy. This study makes us aware that the modulators to not address all of the lung issues associated with CF.
05/29/2026 – Living with Cystic Fibrosis in Lebanon: Rita’s Story – For a long time, CF was presumed to afflict people of European descent. This story is part of our increasing awareness that no ethnic group is immune from CF. The also story reminds us that people living with CF have to deal with all the world’s troubles and, in Rita’s case, the awareness she needs to take care of her CF while fleeing violence.
05/30/2026 – Parenthood journey brings unique mental health challenges for CF adults – May is Cystic Fibrosis Awareness Month, but it is also Mental Health Awareness Month. This study brought the two issues together around the topic of parenthood.