Six posts were made to the CFFC Facebook page during the week of 5/25-31/2025.
05/25/2025 – Personalized phage therapy boosts CF lung function in small study – We’ve heard a lot about phage therapy as a future treatment. This limited study may be an initial step into that future.
05/26/2025 – When “New” Isn’t Always Easy: Why Some Parents Are Hesitant to Change Their Child’s Cystic Fibrosis Modulator Therapy – New treatments bring changes. Dealing with change is not always comfortable, especially when things are already going well. The linked document deals with the reaction to new modulators.
05/27/2025 – A leap forward in transparent antimicrobial coatings – The battle against bacterial and viral infections takes place outside the body as well as inside. The discovery noted in this study could impact the set up in clinics and other medical facilities.
05/29/2025– “We are keeping his memory alive” – memories of Jordan from Team J and his family – This story is a fund raiser for the Cystic Fibrosis Trust; however, we can understand the motivation generated by the loss of a loved one.
05/30/2025 – Signaling molecule PI5P shows promise for treating CF infections – Lung infections remain a significant concern for people living with CF. This research holds promise for enhancing the bodies immune system. It is worth noting that the research considered the implications of use in conjunction with Kaftrio (Trikafta).
05/31/2025 – Calling for Expanded Prenatal Testing – In the “old days” (i.e., before prenatal genetic testing), your only clue to the likelihood of CF was family history. This story reminds us that there are limitations to the current technology.