Seven posts were made to the CFFC Facebook page during the week of 5/4-10/2025.
05/04/2025 – Kaftrio may help patients do more higher-intensity exercise: Study –It is not much a surprise that individuals taking Kaftrio (Trikafta) were more capable of high intensity exercise. Importantly, the study also showed that increased exercise produced better lung function whether or not the individual was taking Kaftrio.
05/05/2025 – “My business helps me be someone other than ‘Ella with CF’ for a little while” – This article presents a series of stories about people who were able to adapt their career paths to fit with their lives with CF through a program offered by the UK’s Cystic Fibrosis Trust.
05/06/2025 – Training CF allies: Sharing the load in managing invisible illness – Having an effective support network is invaluable to managing life with CF. This article puts forth ideas for “training” your network. If the specifics don’t work for you, you may still find some inspiration for building your team.
05/07/2025– Caring for My Children with CF — And Learning to Care for Myself – The people around an individual with CF need care as well. This mom explains her journey to that understanding.
05/08/2025 – Food as medicine: How diet shapes gut microbiome health – The frequency of antibiotic treatments associated with life with CF has a negative impact on the gut microbiome. That situation is compounded by post-transplant immunosuppressant drugs. This study indicates that dietary adaptation can rebuild a health gut microbiome.
05/09/2025 – What My Mother Taught Me About Life with CF – Children often look to their parents as role models. There is a special relationship when a son with CF looks to his mother with CF for strength and guidance.
05/10/2025 – At-home spirometry could benefit cystic fibrosis patients: Study – As much as you might like clinic visits, the ability to monitor lung function at home can help you stay on top of your health care.