ix posts were made to the CFFC Facebook page during the week of 6/25-7/1/2023.
06/25/2023 – High-fat, high-calorie foods may be harmful with pancreatic sufficiency – Consistent with the observations shared at this year’s Kit Taylor lecture, this study indicates that dietary guidelines for people living with CF need to be adapted to the individual digestive enzyme status.
06/27/2023 – I’m 24 and I have CF — and Bone Disease – There are at least two take-aways in this story. One, life with CF is one of evolving challenges. Two, mental strength is an essential element in meeting those challenges.
06/28/2023 – Kaftrio benefits CF patients with advanced disease: Real-world study – Kaftrio is the European brand name used for Trikafta. This study indicates the benefits of the CFTR modulator continued in the 2.5 years since its first use in Spain. [Check tomorrow’s post for a different look at Trikafta.]
06/29/2023 – Trikafta cost in CF seen to far exceed medical savings it provides – As a follow up to yesterday’s post on the effectiveness of Trikafta, this analysis looked at the economics of the treatment.
06/30/2023 – Hannah and Jon’s story: Having a partner with CF – Like other aspects of life, finding your soul mate is comnplicated by CF. As this story shows, “conplicated” does not mean “impossible.”
07/01/2023 – Teens Advocate on Capitol Hill During the Foundation’s 15th Annual Teen Advocacy Day – We are not always aware of legislation that has a significant impact on our lives. Fortunately, the Cystic Fibrosis Foundation works to support proposals that are beneficial for the CF community.