Six posts were made to the CFFC Facebook page during the week of 6/30-7/6/2024.
06/30/2024 – Family Day 2024 Update – Your input for Family Day 2024 (8/4) is needed for registration and discussion topics.
07/01/2024 – “It was incredible to see the ‘army’ of people around the world working tirelessly for the CF community”: Reflections on the European CF Conference – We tend to concentrate on what takes place near to home, but the search for improvements in the lives of people with CF goes on all over the world.
07/03/2024 – Tezacaftor may inhibit making of ceramide, key in brain development – This study offers a caution for a side effect of a component of Trikafta, concluding further study is needed to draw a final conclusion.
07/04/2024 – How Bronchiectasis Led to My CF Diagnosis – A delayed CF diagnosis is a sad story. The circumstances described in this blog make the story sadder.
07/05/2024 – Introducing our new resource for navigating a new diagnosis, ‘Cystic fibrosis diagnosis and your baby: a guide for families’ – A CF diagnosis launches a period of questions and stress. This new publication from the UK’s CF Trust offers up-to-date information and commentary from people who have lived the early stages of life with CF. It includes an important section on maintaining your own physical and mental health.
07/06/2024 – My Unforgettable Journey in Morocco – Traveling with CF requires preparation and precautions. A trip through the Sahara ups the stakes.