Seven posts were made to the CFFC Facebook page during the week of 7/14-20/2024.
07/14/2024 – Gene-editing technology corrects common CF mutation in cells – This article reports on an advance in gene therapy. The research targeted the F508del mutation so, while potentially benefiting a large number of people living with CF, it is not a universal solution.
07/15/2024 – The Impact of Advocacy Beyond the Hill – It’s one thing to speak up for yourself. It is special when speak up on behalf of others like you.
07/16/2024 – Cystic fibrosis: School-aged children benefit from triple combination therapy – This study in Germany confirms the benefits of Trikafta in younger individuals living with CF.
07/17/2024 – “I have fond memories of my time working within the CF community”: retired research nurse and project manager Judy Ryan reflects on her career – Upon retirement, a nurse who participated in CF clinical trials offers some thoughts on her experience with the CF community.
07/18/2024 – Improved growth may be tied to newborn screening, better care – This is another study that confirms what common sense might tell you. Hopefully, scientific results like this can spur improvements in early diagnosis (for example, in non-white populations).
07/19/2024 – Reclaiming My Identity After Starting Trikafta – There are lots of stories of the physical side taking Trikafta. This blog deals with the psychological aspects.
07/20/2024 – Chronic rhinosinusitis in mom and daughter marked by CF symptoms – This article presents a case history (in fact, two case histories) which presented as classic CF except no known CFTR mutations were present.