Seven posts were made to the CFFC Facebook page during the week of 7/21-27/2024.
07/21/2024 – Young Cystic Fibrosis Patient Thriving Thanks To His Family and Team of Caregivers – Many kids with CF have a tough beginning, but dedication and a good support team can get them through.
07/22/2024 – As the Creon supply issues continue, we spoke to clinicians about what you can do to minimise the impact – Agencies in the UK report a global shortage of pancreatic enzymes from two suppliers. If you are impacted, this advice from the UK’s Cystic Fibrosis Trust may be helpful.
07/23/2024 – Join Us at CFFC Family Day – We’re just a dozen days away from CFFC Family Day. Check this update and sign up soon.
07/24/2024 – An Unexpected CF Diagnosis – We have shared stories of delayed CF diagnosis but this one has a special twist.
07/25/2024 – MRI scans, lung clearance index favored as lung tests for children – This study has two pieces of good news: (1) earlier detection of problems (which translates to earlier treatment), and (2) non-invasive tests.
07/26/2024 – Join Us at CFFC Family Day – Just a reminder – please sign up by 7/30.
07/27/2024 – CF and holidays: “We might take a break… but CF doesn’t!” – You may have a summer vacation trip on your agenda. Here are one mother’s thoughts on preparation.