Seven posts were made to the CFFC Facebook page during the week of 8/11-17/2024.
08/11/2024 – How My Double-Lung Transplant Changed Everything – For some, Trikafta has brought a dramatic change in lives. For those not helped by CFTR modulators, the change may come from transplantation.
08/12/2024 – There’s Still Time – There is still time to sign up for the 2024 Living with CF Golf Tournament
08/13/2024 – High-fat diet may not be helping CF patients, mouse study suggests – People living with CF have long been counseled to pursue high-fat diets. This study suggests that this advice is counterproductive.
08/14/2024 – Supporting My Wife Through Unexpected Health Challenges – Without being a Pollyanna, this blogger says it is a good exercise to examine big health events in your life for positive, as well as negative, aspects.
08/15/2024 – Trikafta may ease depression, anxiety in adults with CF: Study – We’ve shared stories of the mental health effects of Trikafta. This study points to positive (and some negative) effects Trikafta can have on depression.
08/16/2024 – “Starting Kaftrio after losing friends with CF really affected me mentally”: James’ story – This story is packed with a lot of “lessons learned.” Of particular not is the importance of finding support for mental health needs.
08/17/2024 – CF patients may struggle with lung transplant decisions, US survey finds – According to the Cystic Fibrosis Foundation patient registry, lung transplants has decreased significantly since the introduction of CFTR modulators. However, transplantation remains an important option for some.