Six posts were made to the CFFC Facebook page during the week of 8/13-19/2023.
08/13/2023 – The evolution of chest physical therapy has made life with CF easier – Advances in drugs get the greatest publicity, there is more to CF treatment. This article looks at the progress of airway clearance.
08/15/2023 – “I went from not even knowing about CF to finding out I’m a carrier and that I’d passed it on to Ava – there’s been a lot to learn” Mum Carley shares Ava’s story – Another story about the discovery that a child has been diagnosed with CF. Despite the similarities, each case is unique.
08/16/2023 – 20-year look at CF orphan drugs shows shift in therapy approaches – This analysis gives insight into the significance of the orphan drug designation as well the change in the focus of CF research.
08/17/2023 – What I Learned Growing up With CF in Appalachia – This man’s story show that some people living with CF have to fight challenges well beyond the symptoms of the disease.
08/18/2023 – Pig kidney xenotransplantation performing optimally after 32 days in human body –With extended periods of antibiotic use associated with longer life expectancy for people living with CF, kidney disease is an increasing threat. This research promises an increased supply of kidneys for transplantation.
08/19/2023 – My do’s and don’ts for supporting sick friends and family members – Best intentions don’t always have the desired affect. This blogger has created guidelines that help her famiy and friends provide the needed support.