Seven posts were made to the CFFC Facebook page during the week of 8/27-9/2/2023.
08/27/2023 – Connections between drinking water quality and increased lung infections in people with cystic fibrosis – Environmental factors influence bacterial growth which, in turn, affect the risks for people living with CF.
08/28/2023 – Voicing My Health Needs Before and After Transplant – We look to medical professionals for their knowledge and experience in building a treatment plan. We should also recognize that the patient is an equally important player on the care team.
08/29/2023 – Gene therapy that modifies CFTR protein appears to be more effective – This study was designed to point gene therapy research toward more effective options.
08/30/2023 – Managing CF as an author: Julian’s story – Another installment from Cystic Fibrosis Trust in their look at the working world for people living with CF. The stories not only provide the individual’s strategies, but also demonstrate that CF does not have to limit career opportunities.
08/31/2023 – Support groups, clear advice needed by parents living with CF – For this study, the researchers gathered information directly from parents living with CF.
09/01/2023 – Creating Change for BIPOC People With CF – The erroneous assumption that CF is a “western European” disease adds additional challenges to the lives of people from different ethnic backgrounds who have CF.
09/02/2023 – Vascular disease, diabetes among risks in years after lung transplant – Transplantation may produce significant improvement in life with CF but this study points out that it also comes with new risks.