Six posts were made to the CFFC Facebook page during the week of 8/31-9/6/2025.
08/31/2025 – Why Access to Trikafta is About More Than Medicine: Lauren’s Story – Amazing treatments for CF exist, but availability of those treatments can vary widely across the CF community. While this story deals with access in Canada, similar challenges exist in the US.
09/01/2025 – Golf for a Good Cause -Can you believe it’s September already? It is, but it isn’t too late to sign up for the Living with CF Golf Tournament on 9/13. Click the link to get the details and online registration.
09/03/2025 – Guest Voice: In my life, CF is just an uninvited passenger – This blogger shares some interesting thoughts on the extent of the influence that CF has on the person you become.
09/04/2025 – “People often don’t see how much effort is involved in day-to-day life”: Tom’s story – In conjunction with the research fundraising by the UK’s Cystic Fibrosis Trust, Tom’s story points to the need to improve the understanding of the issues that arise with aging.
09/05/2025 – Living with Cystic Fibrosis: Kiley’s Story of Strength, Survival, and Mental Health – Pursuing our goals takes some effort. Kiley talks about overcoming the challenges of life with CF in order to set goals for the future.
09/06/2025 – Trial tests new approach with CFTR modulators for cystic fibrosis – The treatment presented in this article is a long way from availability, but there are important reminders. One, clinical trials start with testing safety. Two, research to address CF occurs around the world. Despite the success of current treatments, researcher continue to look for alternate approaches.