Six posts were made to the CFFC Facebook page during the week of 9/20-26/2026.
09/20/2026 – Adults with CF want more genetic counseling, survey finds – The components of CF care have to evolve as the adult population grows.
09/21/2026 – The Battle to Breathe – If you missed the original broadcast of the Nova episode entitled “The Battle to Breathe,” it is being streamed on PBS. A lot of the history of CF care is covered in the one-hour program.
09/22/2026 – Getting through difficult periods with the help and support of others – We recently shared stories promoting self-advocacy. But there are times when a strong team is needed to provide emotional and logistical support.
09/24/2026 – Meet Maddy Bianchin! – Although this story comes from Canada, it is likely that people living with CF in the US have had the same experience of delayed access to CFTR modulators.
09/25/2026 – Care following a lung transplant – This article introduces guidelines adopted in the UK for post-transplant care for people living with CF. (Interestingly, the guidelines refer to the bowel care recommendations produced by the Cystic Fibrosis Foundation.) The article also links to three post-transplant stories.
09/26/2026 – Dr. Janine Hutson: Mapping the Uncharted Territory of CFTR Modulators and Pregnancy – We are just starting to understand the long-term effects of CFTR modulators. This article adds a significant dimension to that research: what are the implications for women taking CFTR modulators during pregnancy.