Seven posts were made to the CFFC Facebook page during the week of 9/24-30/2023.
09/24/2023 – An implantable device could enable injection-free control of diabetes – Although the device discussed in this article was designed to treat Type 1 diabetes. It is conceivable that the theory could be extended to cystic fibrosis related diabetes.
09/25/2023 – Yvonne’s story “When you’re doing comedy, Edinburgh Fringe is always on the horizon, so it’s just wonderful that we got to go.” – Another story of life before and after Kaftrio (Trikafta) – and the ability to pursue a chosen career.
09/26/2023 – Regular food security checks reduce low weight risk in children: Study – Not all CF risks are physical. Limited financial resources can lead to food insecurity which then leads health risks.
09/27/2023 – How I Balance My Career and Life With CF – There can never be too many stories about people who did not let CF dissuade them from pursuing a desired career. This story comes with a few recommendations for managing the workplace.
09/28/2023 – Crucial insights from our patient experience survey of children’s CF care – The observations regarding pediatric CF care in the UK are likely relevant of care in the US.
09/29/2023 – Find A Lung Transplant Center – Whether or not to pursue transplantation is a major decision that warrants careful research. This guide from the Cystic Fibrosis Foundation provides valuable information on available facilities.
09/30/2023 – How my daughter and I use mindfulness for anxiety, and life – This blog post offers an alternative way to manage the stress that is inevitable in life with CF.