Seven posts were made to the CFFC Facebook page during the week of 9/7-13/2025.
09/07/2025 – “Time goes so fast – try not to let CF consume you”: Bryony’s story – This story is about the goal of parenting a child with CF: finding the balance between managing CF and letting the child be a child.
09/08/2025 – 8 life lessons since having my double-lung transplant – Lung transplantation is transformative on multiple levels. The life lessons presented in the article can also be applied to life without transplant.
09/09/2025 – Standing With Those Who Don’t Benefit From Modulators – This blog is a good – and personal – reminder that 10-15% of the CF community do not benefit from the wonders of CFTR modulators.
09/10/2025 – World Health Organisation includes Kaftrio on essential medicines list – There’s more than recognition associated with this listing. Read the short article to learn about the implications of the action taken by WHO.
09/11/2025 – Share your thoughts on gene therapy for cystic fibrosis – Cystic Fibrosis News Today circulated a survey request with the following statement: “Your experiences and insights can help shape research and support for the cystic fibrosis (CF) community. Cystic Fibrosis News Today is trying to understand the interest in gene therapy among patients and caregivers with CF. Through this survey, you can help direct resources, guide research, and improve support where it’s needed most.” [Cystic Fibrosis News is a frequent source for posts to our Facebook page.] The link will take you to the survey.
09/12/2025 – Nanoparticles in gene-editing therapy may correct CF defects – Yesterday, we shared a survey concerning gene therapy. This article describes a new approach intended to overcome the hurdles of delivering of gene-editing materials to mucus-lined lung cells.
09/13/2025 – The Diagnosis My Sister Never Got – Diagnostics have come a long way but, as this story reminds us, medical practitioners need to be aware of CF symptoms before the diagnostics are performed.