Working with CF social workers, CFFC provides emergency financial assistance for expenses temporarily beyond the family’s means. For example, CFFC has provided funds for lodging for a transplant clinic visit, children’s bedding and purchase of baby formula.

Given demands on CFFC’s resources, the emergency fund program is restricted to families who are served by the Rochester CF Center. Emergency fund grants are limited to $500 per year per individual. Awards may be disbursed as a single payment or a series of payments over the course of the year.

The criteria and application process are simple. It starts with a discussion of the emergency need with the CF clinic social worker, case manager or other member of the care team. The clinic staff notifies CFFC of the request for emergency assistance. The individual seeking help sends an email to [email protected] providing the following information:

• The name of the individual requesting assistance

• A brief description of the purpose of the emergency assistance

• The amount requested

• The name of the payee for the emergency assistance [NOTE: payments can be made to third parties on behalf of the person living with CF.]

• The address to which the payment should be sent

CFFC may contact the applicant to clarify the request or seek additional information. CFFC sends an email to confirm the amount and timing of the award.