An announcement from the Cystic Fibrosis Foundation:
While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator, the CF Foundation is hosting a small group discussion to share experiences around Life Without Modulators.
This discussion is for adults with CF who are not eligible for or not benefiting from a CFTR modulator.
Discussions will be peer-led with one or two CF Foundation staff present during the conversations and can assist as needed. Please note this is not a support group facilitated by a mental health professional.
The Life Without Modulators discussion will take place for 75 minutes, on Wednesday, April 12 from 7-8:15 p.m. EST.
Click Here to Register for Small Group Discussion
By registering, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy.
For any questions, please email Kelsey Logan ([email protected]) or Gillian Mocek ([email protected]).