Swinging Fore a Cure Golf Tournament 2023

Mill Creek Golf Club 128 Cedars Avenue, Churchville, NY, United States

Swinging for a Cure is organized by ROC Cystic Fibrosis Awareness, a local charitable organization. The funds raised through this tournament go to the Cystic Fibrosis Foundation. Go to https://roccfa.org/swinging-fore-a-cure to register for the tournament.

CFFC Living with CF Golf Tournament 2023

Southern Meadows Golf Club 1025 Rush Scottsville Road, Rush, NY, United States

The Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday, September 9, 2023. Details, including new payment options and online registration, are presented in Announcing Living with CF Golf Tournament 2023. You can also get the details and a paper entry form by downloading the CFFC Golf Brochure_2023  You can now […]

$70

Webinar: Getting Older and Wiser: The Complexities of Ageing with Cystic Fibrosis

On-line Webinar

Cystic Fibrosis Canada is hosting a webinar dealing with issues arising from the aging of the CF population. Here is the announcement from Cystic Fibrosis Canada:Are you curious about the challenges and complexities faced by individuals with cystic fibrosis (CF) as they age? Join us for a webinar featuring  Dr. Anne Stephenson, Medical Director Canadian […]

Rochester’s Finest 2023

Casa Larga Vineyard 2287 Turk Hill Road, Fairport, NY, United States

From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation leading up to the Celebration in October. The chosen honorees exemplify leadership qualities, are active in their communities, and have excelled in business. Those selected […]

BreatheCon 2024 – Day 1

On-line Webinar

From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]

BreatheCon 2024 – Day 2

On-line Webinar

From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]

WNY Annual Meeting & Awards Celebration

Pane Vino on the Avenue 3400 Monroe Ave, Rochester, NY, United States

2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor our community leaders and find out what's to come in 2024. Wednesday, February 28, 2024, 5:30pm - Pane Vino on the Avenue, Rochester Register Here

Life Without Modulators Small Group Discussion

On-line Webinar

The Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator, the […]

Small Group Discussion – Body Image

On-line Webinar

The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other […]

ResearchCon 2024 – Day 1

On-line Webinar

The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]

ResearchCon 2024 – Day 2

On-line Webinar

The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]

Rochester Great Strides 2024

Genesee Valley Park - Roundhouse Shelter Moore Road, Rochester, NY, United States

Great Strides is the Cystic Fibrosis Foundation's largest national fundraiser that brings together the community to raise awareness and funds towards our mission of finding a cure for all those living with cystic fibrosis. Registration is open! Join us in Rochester on Sunday, May 19. Register Here