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  • About Us
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  • Programs
    • Hospital Help Program
    • Clinic Baggies
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    • Email Newsletter
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    • Emergency Fund
    • Andrew W. Eve Memorial Scholarship
  • Information
    • National CF Organizations
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    • News
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    • CFFC Living with CF Golf Tournament
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12 events found.

Events

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  • September 2023

  • Sat 9

    CFFC Living with CF Golf Tournament 2023

    September 9, 2023 @ 8:30 am - 1:00 pm
    Southern Meadows Golf Club 1025 Rush Scottsville Road, Rush, NY, United States

    The Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday, September 9, 2023. Details, including new payment options and online registration, are presented in Announcing Living with CF Golf Tournament 2023. You can also get the details and a paper entry form by downloading the CFFC Golf Brochure_2023  You can now […]

    $70
  • Mon 25

    Webinar: Getting Older and Wiser: The Complexities of Ageing with Cystic Fibrosis

    September 25, 2023 @ 7:00 pm
    On-line Webinar

    Cystic Fibrosis Canada is hosting a webinar dealing with issues arising from the aging of the CF population. Here is the announcement from Cystic Fibrosis Canada:Are you curious about the challenges and complexities faced by individuals with cystic fibrosis (CF) as they age? Join us for a webinar featuring  Dr. Anne Stephenson, Medical Director Canadian […]

  • October 2023

  • Thu 19

    Rochester’s Finest 2023

    October 19, 2023 @ 6:00 pm - 9:00 pm
    Casa Larga Vineyard 2287 Turk Hill Road, Fairport, NY, United States

    From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation […]

  • February 2024

  • Fri 9

    BreatheCon 2024 – Day 1

    February 9, 2024 @ 6:30 pm - 10:30 pm
    On-line Webinar

    From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]

  • Sat 10

    BreatheCon 2024 – Day 2

    February 10, 2024 @ 1:30 pm - 6:15 pm
    On-line Webinar

    From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]

  • Wed 28

    WNY Annual Meeting & Awards Celebration

    February 28, 2024 @ 5:30 pm - 8:00 pm
    Pane Vino on the Avenue 3400 Monroe Ave, Rochester, NY, United States

    2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor […]

  • March 2024

  • Wed 6

    Life Without Modulators Small Group Discussion

    March 6, 2024 @ 7:00 pm - 9:00 pm
    On-line Webinar

    The Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), […]

  • April 2024

  • Thu 11

    Small Group Discussion – Body Image

    April 11, 2024 @ 7:00 pm - 9:00 pm
    On-line Webinar

    The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on […]

  • Tue 30

    ResearchCon 2024 – Day 1

    April 30, 2024 @ 6:00 pm - 10:00 pm
    On-line Webinar

    The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop […]

  • May 2024

  • Wed 1

    ResearchCon 2024 – Day 2

    May 1, 2024 @ 6:00 pm
    On-line Webinar

    The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop […]

  • Sun 19

    Rochester Great Strides 2024

    May 19, 2024 @ 10:00 am - 1:00 pm
    Genesee Valley Park - Roundhouse Shelter Moore Road, Rochester, NY, United States

    Great Strides is the Cystic Fibrosis Foundation's largest national fundraiser that brings together the community to raise awareness and funds towards our mission of finding a cure for all those […]

  • August 2024

  • Sun 4

    Family Day 2024

    August 4, 2024 @ 1:00 pm - 5:00 pm
    Wickham Farms 1315 Sweets Corners Rd, Penfield, NY, United States

    August 4 @ 1:00 pm - 5:00 pm CFFC is pleased to announce the return to Family Day. Please join us with your family and supporters for an afternoon connecting, […]

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Assisting cystic fibrosis patients and their families in the Rochester/Finger Lakes region

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