We have come across several new links of interest.
Four links connect you to videos covering a wide range of topics typically encountered by people living with CF.
Helping Kids with Cystic Fibrosis Succeed in School – An educational video for school personnel produced by the CF Center at Nemours Children’s Clinic. The video is just under 7 minutes and covers the common issues CF kids face at school.
First Year of Life – A series of videos produced by the Cystic Fibrosis Foundation geared for parents of newly diagnosed CF children. The series includes medical professionals, CF parents and an adult with CF.
CF Living Videos – CF Living produced a group of videos and Webcasts targeting young adults with CF and the issues they face in learning what is normal, sharing with friends and handling treatments.
CF and sexuality – The Royal Children’s Hospital, the Centre for Adolescent Health and Roche (a healthcare company) collaborated on the brochure “What They Don’t Tell You: A Young Person’s Guide to Sexual and Reproductive Health Issues in Cystic Fibrosis.” The link opens a PDF of the brochure which may be printed and downloaded.
Two additional links deal with medical issues and research.
Respiratory/Lungs – The CFF produced a series of Web casts dealing with issues associated with pulmonary function including lung transplantation, sinus disease, chronic medications, airway clearance, exercise and second-hand smoke.
CFF Webcasts – The CFF has produced a series of Webcasts relating to CF research including a 2012 research update, aspects of clinical trials and the drug development pipeline.
