The “stay at home” rules implemented in response to the COVID-19 pandemic has led to a re-examination of the delivery of health care; particularly regarding CF. A team at the University of Arizona is gathering information on the impact these changes have had on the CF community.

Although Cystic Fibrosis Foundation is not directly involved in this survey, the following announcement was distributed by Community Voice:

Topic: Medication Access and Telehealth in CF care during COVID-19
Opportunity: 20-minute Survey
From: A team of investigators from the University of Arizona
Respond by: Friday, July 10, 2020 at 11:59 p.m., ET
A team from the University of Arizona is conducting a survey about medication access and telehealth in CF care during the COVID-19 pandemic. They want to hear from the CF community – adults with CF and all caregivers of persons with CF (including but not limited to, parents, spouses/partners, other family members). 18 or older are welcome to participate in this survey.
To learn more about this anonymous, 20-minute survey, please click the button below. This survey will close on Friday, July 10, 2020 at 11:59 p.m., ET. Upon completing the survey, participants will have the option to enter a raffle for an Amazon gift card.
Complete the Survey
Please note the Cystic Fibrosis Foundation is not involved in this project beyond its dissemination. For additional information or questions please contact the Principal Investigator, Hannah Phan, PharmD, at [email protected].

The survey project team provides the following background on the first page of the survey:

You are being asked to voluntarily participate in this survey study being conducted by investigators at the University of Arizona. The purpose of the survey is to describe current practices and perspectives of adult persons with CF, caregivers of persons with CF (including parents, spouses/partners, family members, etc.), with regards to medications and telehealth services during the COVID-19 Pandemic. You must be 18 years or older to participate. 

Your participation in this survey is voluntary.  The survey is anonymous and no information will be asked that can be used to identify you.  Your participation in this study will involve completing a questionnaire regarding your perspectives on medication education as well as a few demographic questions. You may choose not to answer some of or all of the questions. This survey will take you about 20 minutes to complete. Once the survey is submitted, you cannot withdraw from this portion of the study since there is no identifiable information on the survey. There are no known risks from your participation and no direct benefit from your participation is expected. There is no cost to you except for your time.