Pillar Patient Advocates has reach out to CFFC to help recruit participants in a new research study. The purpose of the study is to understand how cystic fibrosis affects people taking cystic fibrosis transmembrane conductance regulator (CFTR) modulator therapy, including the symptoms they experience and how they impact their daily lives. The text of their recruitment announcement follows.
Have you or a loved one been diagnosed with Cystic Fibrosis and are currently receiving treatment? Pillar Patient Advocates is seeking adult patients and caregivers of adolescent patients to participate in a 60-minute phone/web interview. Participants are paid $200 in appreciation of your input and time. If interested, please complete our brief registration to be contacted at https://www.research.net/r/9KP8TDD or email Christine at Cobermaier@PillarAdvocates.com. Be sure to include your phone number and time zone so a Patient Liaison can reach out to you. We will go through a few screening questions prior to scheduling the actual interview. This study is for US Residents only.