Cystic Fibrosis Foundation is seeking input on various aspects of life with CF. Here is their announcement:

The Cystic Fibrosis (CF) Foundation is conducting a survey of people with cystic fibrosis to better understand their health-related needs and quality of life. We are interested in hearing from ALL people with CF and their families regardless of whether they have ever taken modulators. The goal of this survey is to learn from the CF community about their experiences of care and overall wellness, including emotional, social, and financial well-being. This information will be used to help guide the Foundation’s future efforts to drive research, improve high quality care, and identify resources needed by the community.

The study team is interested in hearing from all adults with CF and the parents/caregivers of children with CF ages 0-17 years. If you would like to participate in this anonymous, 10-15 minute survey, please click on the button below by July 31st, 2022 11:59PM ET.

Complete Survey Here

Individuals who complete the survey will have the option to submit their e-mail address to be entered in a random drawing for a $25 Amazon gift card. Email addresses will never be sold or shared, or attached to survey responses.

If you have any questions about this opportunity, please email [email protected].

Thank you for your time and consideration.


Elizabeth Yu, PhD

Physician Scientist 

Training Program Director Cystic Fibrosis Foundation