Seven posts were made to the CFFC Facebook page during the week of 9/17-23/2023.
09/17/2023 – Opportunity for Clinical Trial – CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. Read more.
09/18/2023 – How I Learned to Be Proud of My Body With CF – Although CF is often called an invisible disease, CF symptoms and treatments do affect physical appearance. This blogger learned to embrace her looks.
09/19/2023 – Trikafta seen to ease sinus disease in CF, but most still affected: Study – This study addresss two CF realities. One, CF is more than a lung disease. Two, the effectiveness of a given treatment varies across the CF population.
09/20/2023 – The Return of Family Day – CFFC is looking forward to the return of Family Day. Learn more by reading the linked article.
09/21/2023 – “My children are going to see their mummy graduate in October and for me it’s everything” – Ana’s story – As has been said many times, every CF story is unique. This story is no different with a delayed diagnosis and the path to (and after) transplantation.
09/22/2023 – Trial: BX004 reduces P. aeruginosa numbers with no signs of resistance – Finding treatments that do not produce resistance in the target organism is important to developing long-term strategies.
09/23/2023 – Navigating Change as My Son Takes Charge of His CF Care – The nature of CF care evolves with aging. One major change is the transition of the management of care from the parent to the child.