Thanks to Pavilion School
CFFC recently received a generous contribution through the Girls Service League at Pavilion Central Schools. The League promotes Dress Down Fridays where faculty and staff pay for the right to […]
CFF Seeking Support for Clinical Trials Act
CFF is asking the CF community to submit comments to their federal legislators in support of the Improving Access to Clinical Trials Act. The text of their call to action […]
Clinical Trial – 4/4/15
The CF Foundation recently provided an update on the following research trial. Clearing Lungs With ENAC Inhibition in Cystic Fibrosis (CLEAN-CF) This Phase 2, multi-center trial will look at the […]
Clinical Trial – 3/27/15
The CF Foundation recently provided an update on the following research trial. Lumacaftor and ivacaftor (VX-809-106) in people ages 12 and older with cystic fibrosis This is a Phase 3, […]
Clinical Trial – 3/26/15
The CF Foundation recently provided an update on the following research trial. Study of N91115 in people with cystic fibrosis ages 18 and older with two copies of F508del-CFTR mutation […]
CFFC Welcomes New Directors
CFFC is pleased to announce the election of two new directors to our board: Chrisanne Mansfield and Walt McCanna. Many of you may recognize Chrisanne as the head nurse on […]
CF Trial – 2/25/15
The CF Foundation recently provided an update on the following research trial. Multicenter Validation of Predictive Sputum (Mucus) Biomarkers in CF This multi-center trial will seek to discover or confirm […]
CFF Announces 2015 Cycle for Life
Here’s the announcement distributed by the Rochester Chapter of the Cystic Fibrosis Foundation: The 2015 Actavis CF Cycle for Life event is scheduled for Saturday, August 8th and we’re thrilled […]
CF Trial – 2/4/15
The CF Foundation recently provided an update on the following research trial. Vertex 661 and ivacaftor (VX-661-106) in people with cystic fibrosis ages 12 and older with F508del-CFTR mutation This […]
Another Informative Kit Taylor Lecture
The 35th Kit Taylor Memorial Lecture was another in the long line of informative sessions. This year’s speaker, Dr. Joseph Pilewski from the University of Pittsburgh Medical Center UPMC), covered […]