Cystic Fibrosis Patient Assistance Foundation
Cystic Fibrosis Patient Assistance Foundation (CFPAF), a subsidiary of the Cystic Fibrosis Foundation, is a non-profit organization that helps people with CF afford the medications and devices they need to […]
CF Trial – 1/7/15
The CF Foundation recently provided an update on the following research trial. Early signs of efficacy study with riociguat in adult homozygous F508 del This is a phase 2, placebo […]
CFF Looking for Input
The CF Foundation released this call for patient and family perspective on clinical trials and other topics: The Cystic Fibrosis Foundation is looking for people who would be willing to […]
Fund Raiser for Missy Brown
Missy Brown is on the waiting list for a lung transplant – and that gets to be expensive. This fund raiser has been planned to help Missy finance the preparation, […]
New CF-Friendly Recipes Added to CFChef Online Cookbook
The following information was distributed in a press release from AbbVie: With the holiday season in full swing, people are scouring the internet for new recipes to impress their family […]
Transplant – A Personal Story
Lung transplantation has increasingly become a viable option in the long-term care for people living with CF. The road to transplant is not an easy one, emotionally as well as […]
CF Trial – 10/31/14
The CF Foundation recently provided an update on the following research trial. Study of Ataluren in people with CF who have a nonsense mutation and are not taking aminoglycosides This […]
CF Trial – 10/22/14
The CF Foundation recently provided an update on the following research trial. QBW251 in people with cystic fibrosis and healthy participants This is a phase 2, placebo controlled trial that […]
Sam’s Club Recall for B. cepacia
The Cystic Fibrosis Foundation (CFF) has issued the following advisory: Dear Colleagues, It has come to our attention that there has been a recall from Sam’s Club on Simply Right […]
Save the Date – Kit Taylor Lecture
Mark your calendars for the 35th Kit Taylor Memorial Lecture. The community portion of the lecture series will be held January 26, 2015. The date is earlier than usual to […]