CFFC and Infection Prevention
CFFC’s Board of Directors has formulated a position statement covering our responsibilities in promoting infection prevention at events sponsored by CFFC. Basically, we are seeking a reasonable balance between enabling […]
CF Trials – 4/4/14
The CF Foundation recently provided an update on a research trial. Baby Observational and Nutritional Study – Pancreatic Enzyme Replacement Therapy Sub-Study This interventional study will be take place at […]
Catch Up on the Kit Taylor Lecture
No need to feel sorry if you missed the 34th Annual Kit Taylor Memorial Lecture. Thanks to the Pediatric Pulmonology team at Golisano Children’s Hospital (our CF Center), you can […]
Students Lend a Hand to CFFC
CFFC got a big boost from student leaders on March 20, 2014. The event was the annual conference for District XI of the New York State Council on Leadership and […]
Spread Sunshine on a Gloomy Outlook
Just like sunshine breaking through the clouds can brighten our mood, a wish coming true can buoy the spirits of a child facing the challenges of CF. That’s the driving […]
Apply on Line for BEF Scholarships
The Boomer Esiason Foundation (BEF) recently announced that all students with cystic fibrosis who are interested in applying for one of their scholarships, can now do so online. A single […]
CF Trials – 3/7/14
The CF Foundation recently provided an update on a research trial. GOAL-e2 Expansion Study The purpose of this study is to collect samples from people who have either the R117H […]
CF Trials – 2/5/14
The CF Foundation recently provided updates on three research trials: Nasal Insufflation in Cystic Fibrosis, Study of Inhaled TOBI for the Treatment of Early Infections, and Tobramycin Inhalation Powder (TIP) Administered […]
CF Trials – 1/31/14
The CF Foundation recently provided updates on two research trials: Ivacaftor Effects Upon Insulin and Incretin in CF, and Sweat Chloride Comparison Project Ivacaftor Effects Upon Insulin and Incretin in […]
Latest Issue of “Inspire”
You can now access the Fall/Winter 2013 issue of the Rochester CF Clinic’s Inspire newsletter. Just click this link to view Inspire_Fall_Winter_2013 In this issue, you will find: articles laying […]