Living with CF Golf Tournament
A cool and rainy start seems to be the standard for the CFFC golf tournament. But the challenging weather conditions did not deter the hearty golfers who came to play […]
CF Trial – 8/2/14
The CF Foundation recently provided an update on the following research trial. TOBI Podhaler Usability Study This is a phase 4 multi-center trial for people over the age of 6. […]
CF Patient Assistance Resource Library Updates
The Cystic Fibrosis Foundation (CFF) provides a wealth of information through its Patient Assistance Resource Library (PARL). To help you keep up with the contents of this site, we have […]
CF Trial – 07/24/14
The CF Foundation recently provided an update on the following research trial. Inhaled Mannitol in Adults with Cystic Fibrosis This is a phase 3 multi-center trial that will look at […]
CF Education Day a Success
May 31, 2014 was a gorgeous day – a great day to be in the park. The day was made even more spectacular by the local CF community present at CF […]
CF Trial – 06/22/14
The CF Foundation recently provided an update on the following research trial. Staphylococcus (Staph) aureus small-colony variants This trial will look at CF respiratory cultures to identify types of the […]
Paying It Forward
There’s no better feeling than making a child smile. That’s especially true when the child is dealing with all of the challenges of hospitalization. CFFC recently had the opportunity to […]
Calling the Adult CF Center
Have you ever wondered how to get in touch with the doctors or other staff at the Adult CF Center? Or how your call will be handled? The answers to […]
AbbVie CF Scholarship Announced
Information on the 2014 Abbvie Scholarships has been provided to CFFC. The announcement follows: Going to college or university can be expensive, but for students living with cystic fibrosis (CF), […]
CF Trials – 04/17/14
The CF Foundation recently provided an update on a research trial. Vertex 661/770 in People with Cystic Fibrosis and F508del-CFTR mutation The study will evaluate safety and effectiveness of VX-661 […]