Clinical Trial Results – 10/25/12
Tthis week, the Cystic Fibrosis Foundation released results from three studies. Surfactant Aerosol Pilot Study This was a small clinical study to determine whether the inhaled aerosol drugs used to […]
So Much Gratitude!
September 12th was the night of the CFFC Community Gathering. In addition to bringing together all parts of the local CF community, we wanted the opportunity to express appreciation for […]
Clinical Trials Results – 9/7/12
Results from a safety study of azithromycin in Cystic Fibrosis patients negative for pseudomonas aeruginosa: This study evaluated the safety of an additional 6 months of azithromycin treatment in participants […]
Scholarship Awarded
The Andrew W. Eve Memorial Scholarship committee has announced the initial award from the fund. A scholarship in the amount of $1,000 has been awarded to Kyle R. Schuhart to […]
Clinical Trial Results – 7/7/12
Results from three drug studies were distributed on July 7, 2012 through the CF Foundation clinical trial alerts program. In each case, it was noted that the results were reported […]
Info on the Health Care Law
The implementation of the Affordable Care Act is now more realistic with the recent Supreme Court ruling. Despite the amount of publicity generated around this topic, it can be difficult […]
New Ivacaftor Trials
Two additional trials for ivacaftor (marketed by Vertex as Kalydeco) are in the works. One trial, labeled KONDUCT, is geared toward CF patients who have the R117H-CFTR mutation. This is […]
Clinical Trial Results
The CF Foundation recently shared some study results through its Clinical Trial Alerts system. Brief summaries of four trial results are presented below, including a link to more detailed information. […]
Kids Wish Network
Kids Wish Network is a national that grants wishes to children living with life-threatening illnesses. The organization brings smiles to many deserving children who just need a break from their […]
Clinical Trial Results – 7/4/12
The CF Foundation distributed a clinical trial alert announcing results that will be welcomed by a large segment of the CF community. The study looked at the safety and effectiveness […]