Vertex 809/Kalydeco Phase 3 Trials
The Cystic Fibrosis Foundation (CFF) announced two nearly identical phase three trials to examine the safety and effectiveness of the study drug VX 809 in combination with Kalydeco in people […]
TOBI Podhaler Approved
On March 22nd, the FDA announced its approval of the TOBI Podhaler (tobramycin inhalation powder) for the management of cystic fibrosis patients with Pseudomonas aeruginosa. The TOBI Podhaler is a […]
CFF Infection Prevention and Control Policy
The Cystic Fibrosis Foundation (CFF) recently updated its Infection Prevention and Control Policy for all Foundation events, meetings and offices. You can read the text of the March 14, 2013 […]
Lots of Links
We have come across several new links of interest. Four links connect you to videos covering a wide range of topics typically encountered by people living with CF. Helping Kids […]
Video for Educating School about CF
Being a “normal kid” at school can be a challenge. Part of that challenge is developing an understanding with teachers, administrators and others in the school system. The Cystic Fibrosis Center […]
CF Christmas Ball a Success
The 2012 Cystic Fibrosis Christmas Ball was a double success. Not only did the attendees have a grand time, but the event hit its financial target by raising $33,330 for […]
Updated Financial Data
Information on CFFC’s finances has been updated to include activity through December 31, 2012. You can find this data on our Finances page. Here are a couple of highlights: Support […]
Review of New Nebulizer
Members of our CF community have sought information on the eRapid® nebulizer. The CF Foundation commissioned a white paper on the eRapid® nebulizerwhich uses the vibrating mesh technology which shortens […]
What’s a feeding tube?
Feeding tubes are sometimes recommended to increase the nutritional intake for people living with CF. It’s not surprising if you are put off by the idea, but it may not […]
Jerry Cahill – Courage in Sports
Jerry Cahill, a 56-year old Cystic Fibrosis survivor and athlete, was featured on CBS’s Courage in Sports Sunday, November 11, 2012. The program offered stories about outstanding, inspirational athletes during […]