Know Your CFTR Mutation
Understanding the mutation that produces your particular version of CF is more than scientific curiosity; it holds the key to the progression of the disease and the treatments that may […]
Another Successful Golf Event
CFFC chalked up another golf tournament on September 9th that was a success by every measure. After a chilly start, the sun (and golfers’ spirits) warmed things up quickly. The […]
FDA Recall Announcements
Here is a notice distributed by the Cystic Fibrosis Foundation: The following two FDA announcements may affect the CF community. Mid Valley Pharmaceutical is recalling lot# 23221701 of Doctor Manzanilla […]
CFF Clinical Care Guidelines
Adjusting to life after the diagnosis of CF can be confusing with so much information to absorb and so many things to incorporate into your schedule. Recognizing this, the Cystic […]
Financial Report for 2016-17 Fiscal Year
The results of our operations for the 2016-17 fiscal year, which ended on June 30, 2016, are presented in CFFC Financial Statement 06302017. A breakdown of the cumulative revenues and […]
Making Treatment Accessible for Cystic Fibrosis Patients
The Cystic Fibrosis Engagement Network recently published a white paper dealing with issues affecting access to CF treatments. The report notes: While the Orphan Drug Act successfully increased the research […]
Adult Guide to Cystic Fibrosis
Cystic Fibrosis Foundation has released a comprehensive reference document geared to the adult CF population. Their release states: The face of cystic fibrosis is changing as adults with CF now […]
Quite the Night
May 23rd was quite the night. CFFC’s Education Night was the perfect mix of fun, socializing and learning. You can also find a slide show of pictures from the event […]
New Resource for Family Planning
Consistent with their mission “to provide all people living with cystic fibrosis the opportunity to leave full, productive lives,” CFF has launched a new section on their web site titled […]
Kit Taylor Lecture Highlights Community Focus at CFF
Dr. Drucy Borowitz was the guest speaker at the 37th Annual Kit Taylor Memorial Lecture on March 28, 2017. She discussed recent developments at the Cystic Fibrosis Foundation (CFF) in […]