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CF Foundation 2019 CF Health Insurance Survey

The Cystic Fibrosis Foundation is conducting a follow up to last year’s survey on health insurance concerns in the CF community. Here is the text of the announcement.

Last year more than 2,500 members of the cystic fibrosis community responded to our landmark CF Health Insurance Survey. This survey, along with in-depth interviews with people with cystic fibrosis and parents of children with CF, has shaped Compass programming and helped us advocate with decision-makers across the country.

The 2019 CF Health Insurance Survey is now open and available at for people with CF, parents, and caretakers.

Take the Survey

This year’s survey, designed with researchers at George Washington University, will help the CF Foundation to better understand how people with cystic fibrosis navigate health insurance, access to care, and cost.

The survey should take about 15 minutes to complete. Your voice is critical in helping to inform Foundation policy efforts and programming.

We greatly appreciate your continued support!

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