02/16/2022 – Why Particpate in a Clinical Trial? – This article from Cystic Fibrosis Australia contains some points specific to that country; however, clinical trial standards are consistent across national boundaries. [Note: This site conducts a brief security test before connecting to the article.]
02/17/2022 – Vitamin D Insufficiency Prevalent in CF Children Up to Age 3, Study Says – Adequate vitamin supplementation requires finding the optimal pancreatic enzyme replacement therapy.
02/18/2022– The Long Wait to Finally Get to a CF Diagnosis – A CF diagnosis is stressful. A long wait increases the stress geometrically.
02/19/2022 – Fighting Antimicrobial Resistance: Share Your Story About Infection – Cystic Fibrosis Foundation is gathering person stories about battles with resistant infections as part of their advocacy for legislation to boost research. You can submit your story through this link.
02/20/2022 – The cystic fibrosis gene discovery is a Nobel Prize worthy discovery – A professor at McGill University is promoting Dr. Lap-Chee Tsui and Dr. Francis Collins as candidates for the Nobel Prize.
02/21/2022 – Why Sharing My Positive COVID Results Mattered – The underlying messages in this blog are pay attention to what your body is telling you and test rather than guess.
02/22/2022 – CF Foundation 2022 Community Survey – The CF Foundation is interested in hearing about how they been doing over the last few years to ensure that programs and services are meeting the evolving needs of the CF community. This survey closed on 2/28.
02/23/2022– Cystic Fibrosis Around the World: Italy – A trip back in the time machine to read Gunnar Esiason’s report on CF care in Italy.
02/24/2022– Researchers find trove of proteins that may influence cystic fibrosis – We know that CF symptoms, as well as responses to specific medications, vary from person to person. This study provides insight into those variation and may lead to more individualized treatments.
02/25/2022 – Holly’s top tips for engaging with your local parliamentarian – Another set of tips geared to the United Kingdom which can be effectively translated to advice relevant in your community. One required adaptation is the link to find government representatives. Try a simple search such as “Find your local legislator.”
02/26/2022 – My Advice to Other Parents of Color About Their Child With CF – This blogger has two messages: the danger of stereotyping in medical diagnosis and the importance of teaching your children fully participate in their care.
02/27/2022– Cystic Fibrosis Canada Releases Canadian CF Registry 2020 Annual Data Report – This report from Canada also contains a link to an additional report on the trends shown in the data.
02/28/2022 – How Parts of Trikafta Help Enable CFTR Protein Evident in Clusters – This research explains how, in part, CFTR modulators work and may suggest techniques to help with other diseases.