CFFC Facebook Posts – January 2020 – Part 1
01/01/2020 – Top 10 Blog Posts of 2019 – Yesterday, we shared a forward-looking post. But the new year is also a time to look back. The Top 10 list from CFF’s blog shows that, while people living with CF are concerned with maintaining their health, they have a lot of interest in raising CF awareness in the world around them.
01/02/2020 – Copeptin a Potential Biomarker of Symptom Severity During Pulmonary Exacerbation, Study Shows – If science can find indications of exacerbations without symptoms, treatments can be started sooner – and be more effective.
01/03/02020 – A Few (Realistic) Expectations for the Next Decade of Cystic Fibrosis Care – Gunnar Esiason shares his vision of the the advance in the next decade.
01/04/2020 – 8 Ways to Guard Against Germs in Everyday Life – In the midst of cold and flu season, it is good to remind ourselves how to minimize the risks from exposure to germs.
01/05/2020 – Gene Variations May Explain Resistance to Lung Infections in Some CF Patients, Study Says – No surprise that genes other than CFTR can affect the progress of CF.
01/06/2020 – My Strict Schedule Gives Me Power Over My CF – There’s nothing like success to inspire you to maintain your daily regimen.
01/07/2020 – How ‘good’ viruses may influence health – While this article does not deal specifically deal with CF, it is good background information for understanding research in phage treatments and other aspects of CF care.
01/08/2020 – 5 Ways My Quality of Life Has Improved on Trikafta – Yes, CF is different for everyone. That said, Gunnar Esiason’s account of his experience with Trikafta is consistent with other stories you may have read or heard.
01/09/2020 – Don’t Overlook Importance of Sleep Hygiene, CF Experts Advise – The bad news: this article confirms that CF care is a 24/7 situation. The good news: the article concludes with solid suggestions for improving sleep-time component of your care.
01/10/2020 – How I Found the Right Mental Health Counselor – It is said that acknowledging a problem is the first step toward solving it. Now that mental health is recognized (generally) as significant component of CF, we need to find better care for these issues.
01/11/2020 – New CEO Michael Boyle Outlines ‘Cure, Care, Community’ Priorities for CFF – There is no quit at CFF. The first bullet of the new CEO’s goals notes the search for CFTR correction “no matter what their genotype is.”
01/12/2020 – Patient Privacy – Zip It – A personal, historical view of patient privacy.
01/13/2020 – When Parental Anxiety Makes It Hard to Breathe – Anxiety affects caregivers as well as those living with CF.
01/14/2020 – Tea drinkers live longer -While this research is not related to CF, curiosity was tweaked by those interested in alternative medicine. Besides, people living with CF are not immune from other health issues.
01/15/2020 – My Rocky Road to Lung Transplant – You’ve heard stories like this before, but you can’t hear it too many times: the triumph of the recipient’s spirits, the skill of the medical team, and the grace of the donor.