01/17/2022 – Looking after your mental health and wellbeing in difficult times – Once you recognize the importance of mental health, you need strategies to deal with it. This article from Cystic Fibrosis Trust offers some suggestions. NOTE: Resource references are specific to the UK, but you can substitute CFF’s Compass program.
01/18/2022 – Scientists Figure Out How Tezacaftor, Lumacaftor Interact With CFTR – This study not only adds to the understanding of CFTR modulators but also offers a path to discover treatments that will address mutations not affected by the current medications.
01/19/2022 – Out-Of-Pocket Costs Are an Avoidable Burden on American Healthcare – This discussion of health care costs is more than simple opinion knowing that Gunnar Esiason holds an MBA.
01/20/2022 – Helping My Daughter Learn to Like Food – This story demonstrates the importance of creativity in meeting the demands of life with CF.
01/21/2022 – Award Granted to Support Research on Therapies to Fight Lung Bacteria – Research is underway on another avenue to fight resistant bacterial infections.
01/22/2022 – Exercise and CF – Some good advice on exercise in CF; particularly, associating exercise with activities you enjoy.
01/23/2022 – Bacterial infections in sinuses of cystic fibrosis patients share surprising similarities – A fresh look at bacterial evolution may lead to more effective treatments for chronic infections.
01/24/2022 – Building Mutual Trust With My Child’s Care Team – “Partnership” is the key with the patient/family and the professionals playing their parts.
01/25/2022 – My Parents Are My Heroes – Yesterday’s post was about building a care team. This blog points out that family is a critical part of that team.
01/26/2022 – It is a Gift to Hear Mallory Smith’s Voice in ‘Salt in My Soul’ Documentary – Gunnar Esiason reviews a movie released in theaters last week and on streaming services yesterday.
01/27/2022 – “Salt In My Soul, An Unfinished Life” book review – As a follow up to yesterday’s post, this link is a review of the book “Salt In My Soul, An Unfinished Life” on which the movie is based. The review is written by CFFC’s past president Kori Tolbert Doherty. https://www.facebook.com/100029060634736/posts/610933526551996/?d=n
01/28/2022 – Partial Monocyte Transplant Improves Survival in Mouse Study – This study provides several insights on the impact CF has on the body’s immune system and identifies a path to a potential treatment option.
01/29/2022 – Using Creativity to Support My Mental Health – This blogger not only offers a suggestion for dealing with mental health, but also reminds us that mental health is an issue for those who support a person living with CF.
01/31/2022 – Achromobacter Infection in Children Linked to Worse Lung Function – This study highlights the need for accurate identification of bacteria causing an infection to ensure effective treatment.