CFFC Facebook Posts – March 2019 – Part 2
For those who do not visit Facebook, here are the posts to the CFFC page for the second half of March.
03/16/2019 –Living with an unpredictable disease – Many can probably relate to these stories of CF’s unpredictability.
03/17/2019 – The 3 Words I Want Every Single Hospital Employee to Hear – This mother is channeling thoughts we have all had. “Please just listen.”
03/18/2019 – Determining what binds to mucus – This may not be a glamorous scientific pursuit but it could be critically important to CF treatments.
03/19/2019 – Connections Winter 2019 – Cystic Fibrosis Canada publishes a quarterly newsetter. While some of the articles are Canada-specific, you may find some to be relevant and interesting.
03/20/2019 – Virus Can Help Treat Pseudomonas aeruginosa in CF, Study Suggests – The use of bacteriophages has been previously reported. This study extended analysis to live a live animal model.
03/21/2019 – Let’s Talk About It: Complementary and Alternative Medicines and Supplements – A very thoughtful approach to considering treatment options outside the “normal” routine of medications.
03/22/2019 – Agenda Set for Education Day 2019 – Here’s the news you have been waiting for: the full program for Education Day. This article also includes a link to on-line registration.
03/23/2019 – Amphotericin Holds Promise as Treatment for All CF Patients, Preliminary Study Shows – This approach to replacing the CFTR function in lung lining cells could work for all mutations.
03/24/2019 – Stopping B. cepacia in its tracks – Cystic Fibrosis Trust (UK’s equivalent of CFF) shared information about Burkholderia cepacia in reaction to “Five Feet Apart.”
03/25/2019 – My 5 Takeaways From ResearchCon – Some interesting insights from a co-chair of the CFF ResearchCon.
03/26/2019 – 39th Annual Kit Taylor Memorial Lecture – The Rochester CF community is fortunate to have the opportunity to expand our knowledge on relevant topics through the annual Kit Taylor Memorial Lecture.
03/27/2019 – New Strategy May Boost Antibiotics’ Efficacy in CF Patients, Study Suggests – A promising study on a strategy that is like tearing down the castle walls that Pseudomonas build to protect itself.
03/28/2019 – Three Survey Opportunities – You have opportunities to share your thoughts through three surveys announced by CFF Community Voice. Response deadlines are between April 3rd and April 9th.
03/29/2019 – Coping With Grief – Every CF story is different; that applies to the emotional aspects as well as the physical. This is one story about recognizing and dealing with grief.
03/30/2019 – Existing drug may improve lung function – Sometimes research can lead to an “old” drug rather than a “new” drug.
03/31/2019 – A virtually perfect connection: dating and cystic fibrosis – An interesting dialog from UK’s CF Trust inspired by “Five Feet Apart.”