Seven posts were made to the CFFC Facebook page during the week of 9/13-19/2026.
09/13/2026 – Medications, Treatments and Being Four: A Day in Jack’s Life – Most CF stories have references to the complexity of, and time consumed by, daily CF care. This story presents the details which make those references more real.
09/14/2026 – Another Successful Tournament in the Books – The Living with CF Golf Tournament is our only fund-raising event. Follow the link to see how we fared with the 2026 edition.
09/15/2026 – The Battle to Breathe – The Nova series on PBS will be airing an episode, “The Battle to Breathe,” on Wednesday that deals with the development of Trikafta. Spoiler alert: The linked preview includes an appearance by former CFFC President, Kori Tolbert Doherty.
09/16/2026 – Developers partner to advance inhaled CF treatment toward human trials – The treatment discussed in this article is a long way off since clinical trials have yet to be schedule. The good news; however, is the effort to find treatments to correct the CFTR protein regardless of the mutation.
09/17/2026 – Cystic Fibrosis and Health Insurance: What I’ve Learned About Choosing Coverage – CF treatment is expensive, so insurance coverage is critical to maintaining care. This story presents some nightmares to encourage thorough research of insurance coverage options and self-advocacy to ensure the coverage is properly applied.
09/18/2026 – My top tips for navigating university with CF – With school terms just underway, here is some handy advice for adapting to a new environment without relaxing CF care. The observations are based on starting university/college but could equally apply to younger kids entering a new school.
09/19/2026 – Holding on to Hope for Lyvia – Parents, who know they are CF carriers, understand the odds that their child may have CF. They still have to adjust to the diagnosis.